B.C. boy denied $19,000-per-month drug to ease ‘crippling pain’ for 3rd time

Sooke mom Jillian Lanthier says son Landen Alexa has been forgotten about by Premier John Horgan

After months of trying to find funding for medicine that could change six-year-old Landen Alexa’s life, he was denied coverage from B.C. Pharmacare for a third time.

“It’s just me fighting right now. The media is over it, and I have been brushed off by [Premier] John Horgan and [Health Minister] Adrian Dix,” said Jillian Lanthier, Landen’s mother. “They won’t acknowledge me as a human being.”

Last June, Landen, a Sooke resident, was diagnosed with systemic juvenile idiopathic arthritis, more commonly known as SJIA, a disease that causes his body to attack itself, leaving him with crippling muscle and joint pain and with virtually no immune system.

The disease is so severe, even a common head cold can be potentially fatal for him.

RELATED: Six-year-old Sooke boy needs $19,000 a month to treat rare form of arthritis

The medicine Landen is on now is no longer effective, and the only option for treatment is a drug called Ilarus, which is going to cost Lanthier $19,000 a month. It’s not covered by B.C. Pharmacare.

Landed spent Christmas Eve in hospital, screaming in pain from the disease, and yesterday began chemo to help manage the pain.

“They almost had to cut his shirt off because he had no mobility in his arms,” Lanthier said.

She explained that Landen has good days and bad days, but lately has been consistently coming home by noon in crippling pain.

“The chemo will hopefully help a bit, but I just look at it as ‘Here you go Landen, another Band-Aid’,” Lanthier said.

“I’m feeling very angry and sad.”

In response to Landen’s battle, a petition has been started by the Cassie and Friends Society for Chieldren with Juvenile Arthitis and other rehuematic diseases. So far, it’s received more than 8,000 signatures.

Lanthier added that she is frustrated because she has watched medicine, such as the abortion pill, recently get covered by the B.C. Health Ministry, but can’t get a response from anyone to find funding for Landen.

“It’s great that those types of things are free for everyone in the province now, but I am sitting here and my son is fighting to live a normal life, and no one will even acknowledge us,” she said.

There are only approximately 10 children in B.C. who are battling the same disease as Landen, and the medicine could greatly improve his quality of life, helping with pain and allowing him to make fewer hospital visits.

“I’m not giving up, and I’m not taking no for a third time as their final answer,” said Lanthier. “I have a lot more fight left in me, I just don’t know which avenue to take yet.”

Horgan, who is also MLA for the Sooke region, did not return calls for comment.



editor@sookenewsmirror.com

Like us on Facebook and follow us on Twitter

Just Posted

B.C. turns up the heat

Environment Canada has issued a special weather statement for most the province due to high temperatures

VIDEO: Catalina awes crowd at Long Beach Airport

Historic aircraft flew over Bamfield, Tofino and Ucluelet.

Search for mariners who capsized near Tofino turned over to RCMP

“Our thoughts are with the loved ones of the missing.”

Washington State man facing murder charges in 1987 killing of Victoria couple

Two counts of aggravated first-degree murder filed against William Talbott II in Snohomish

VIDEO: Catalina awes crowd at Long Beach Airport

Historic aircraft flew over Bamfield, Tofino and Ucluelet.

Capitals coach resigns after Stanley Cup win

Barry Trotz announced his resignation on Monday

B.C. pledges $550 million for Indigenous housing

Aboriginal leaders say federal government needs to pitch in too

Sweden beats South Korea 1-0

Sweden gets benefit of video review in World Cup

Blue Jay Roberto Osuna not expected to appear in court

The Blue Jays pitcher is charged with one count of assault by Toronto police

Global warming cooks up ‘a different world’ over 3 decades

Over 30 years the world’s annual temperature has warmed nearly 1 degree according to the National Oceanic and Atmospheric Administration

Family separation policy starts dividing Republicans

Deep concerns arise over the child separation policy in the U.S.

Strong earthquake in Japan kills 3

The magnitude 6.1 earthquake that struck the area early Monday near Osaka

BC Lions defensive back Marcell Young levels streaker in home opener

Young hit the fan near one of the 45-yard lines

Most Read